Archive for the ‘Share Your Wisdom’ Category

Do Vaccines Cause Autism, Apparently not

Thursday, February 12th, 2009

Just saw this report, could vaccines be the great dead end towards finding a cure? It seems an awful lot of money has been spent and many pointing fingers..

WASHINGTON (Reuters) – A special U.S. court ruled against three families on Thursday who claimed vaccines caused their children’s autism.

The Vaccine Court Omnibus Autism Proceeding ruled against the parents of Michelle Cedillo, Colten Snyder and William Yates Hazlehurst, who had claimed that a measles, mumps and rubella vaccines had combined with other vaccine ingredients to damage the three children.

“I conclude that the petitioners have not demonstrated that they are entitled to an award on Michelle’s behalf,” Special Master George Hastings, a former tax claims expert at the Department of Justice, wrote in the Cedillo ruling.

The families sought payment under the National Vaccine Injury Compensation Program, a no-fault system that has a $2.5 billion fund built up from a 75-cent-per-dose tax on vaccines.

No judges but instead three “special masters” heard the three test cases representing thousand of other petitioners.

They asked whether a combination vaccine for measles, mumps and rubella, or MMR, plus a mercury-containing preservative called thimerosal, caused the children’s symptoms.

Read More here

ATTN New Yorkers: State Assembly to Hold Hearing on Autism Services

Friday, December 12th, 2008

The Assembly Standing Committee on Insurance will hold a Public Hearing regarding the Treatment of Autism Spectrum Disorder on Thursday, December 18, 2008 at 10am to discuss the management of Autism in New York State with specific attention to early diagnosis and intervention. The meeting will be held in Chancellor’s Hall in the State Education Building at 89 Washington Avenue (use the entrance on Hawk Street) in Albany.

During the hearing, testimony will be presented to evaluate programs and treatment options that already exist in this state for children with ASD, as well as evaluating what can be done to improve their living standards and assist families and caregivers with their many burdens, including financial, of dealing with Autism Spectrum Disorders.

This is the perfect opportunity for our community to demonstrate to the NYS Assembly that the autism community is dedicated to these issues – enough to show up in the winter cold and at holiday time – it’s just that important!

HOW CAN YOU HELP?

1) DRIVE TO ALBANY! This is a great chance for our community to demonstrate how important this issue is moving forward with our physical presence.  Please plan on attending.  We want to PACK THE ROOM!

2)  FORWARD THIS EMAIL FAR AND WIDE! Again, we want to pack the room so send this to anyone that you think could attend: neighbors, coworkers, family members, your child’s therapists!

3) REGISTER TO STAY INFORMED! If you haven’t signed up already, please visit the Autism Votes website and sign up to receive action alerts as we move forward on autism insurance reform in the state of New York!

Thank you for your help in this effort,

Your New York State Chapter Advocacy Chairs:

Jim Fahey, CAC – All New York State
NewYorkCAC@autismspeaks.org

Julie Rotunno, CAC – New York City
NYCCAC@autismspeaks.org

Julie Buick, CAC – Rochester
RochesterCAC@autismspeaks.org

Sharan DePalma, CAC – Westchester
WestchesterCAC@autismspeaks.org

Melamine found in Baby formula… In The USA!

Tuesday, November 25th, 2008

Reuters is reporting that trace amounts of the deadly chemical Melamine was found in US baby formula. How does this happen anywhere? How can this happen in the USA! Shame on the manufacturers and those responsible for oversight of our Foods and Drugs- I guess that would mean the FDA !

WASHINGTON (Reuters) – U.S. health officials have uncovered trace amounts of the chemical melamine in one sample of infant formula sold in the United States, a Food and Drug Administration spokeswoman said on Tuesday.

The amount found in the sample was no cause for concern, said FDA spokeswoman Judy Leon said. “There’s no basis for concern because we’re talking about trace levels that are so low … that there’s absolutely no risk,” she told Reuters.

Melamine-tainted formula was found earlier this year in China, where thousands of children fell ill and several died.

(Reporting by Susan Heavey, editing by Chris Wilson)

Dear President Obama

Thursday, November 6th, 2008

=====================================================

Looks like we are making progress..

President-Elect Obama has drafted comprehensive autism legislation, including a section addressing a broad based federal autism insurance mandate.

In his Presidential campaign statement on Autism Spectrum Disorders, President-Elect Obama committed to bringing autism insurance reform to the entire nation. The statement stated that Obama and Biden “will mandate insurance coverage of autism treatment and will also continue to work with parents, physicians, providers, researchers, and schools to create opportunities and effective solutions for people with ASD.” For the complete campaign statement, and to read the draft legislation, go to http://www.autismvotes.org.

=====================================================

Please be true to your word and fund more in depth research regarding the causes and prevention of Autism

and other PDD’s   1 in 150 is an epidemic of the worst proportions as it affects defenseless children and can destroy families, wreak hvvac on local school board budgets and community taxes. We need solutions now.

Here are some suggestions, Investigate and report back within 12 months time any connection regarding

- Plastic PBA’s, Cell Phone Signals and Mercury laced shots

- Providing economic support for families who actively seek and complete therapy’s currently not covered under health insurance

- Providing economic support on a per child basis still in the school system for providing a more precise and personalized education platform and goals to work towards. I do well for my family but paying $10-$25,000 for treatments, or more per year is just a bit too much to afford.

- Increasing regulation and oversight over Autism related treatments, too much hope being sold with snake oil out there

- Creating a national database of what works for which conditions best, right now its trial and error over and over again

- Provide $10 billion in funding Autism research asap, at both the commercial and holistic levels.

12 months is aggressive, but we need to fast track this as it continues to grow in numbers both in terms of those afflicted, and those it affects.

Do it Barrack, help our children and make this your legacy while still in office, not in the last few weeks of office.  Do it now..

Rockland County, NY Autism Symposium Event Set for September 25, 2008

Thursday, September 11th, 2008

Dear Friends:

The Third Annual Rockland County Autism Symposium will be held on September 25, 2008 at the Holiday Inn Hotel in Suffern, NY. Once again, I am pleased to co-sponsor this symposium with Camp Venture, Inc., the Needelman Family and Mindworks, a private foundation.

We are again privileged to feature presenters from prestigious institutions, who are dedicated and distinguished experts in the field of Autism Spectrum Disorders. Our focus this year will be on new research, abnormalities in sleep, pharmacological treatment, a look at adults with Autism and more. You may view the full program and information on our speakers, above.

Last year, our Symposium set the Rockland County record for attendance at any symposium to date. We look forward to this year’s event with great anticipation, and your attendance and participation is both valued and appreciated. Through the generosity of the Needelman Family and Mindworks there is no fee for registration and a complimentary lunch will be provided. To secure a seat, please click the reservation link and do it soon! Last year, we reached maximum capacity well in advance of the event. Please feel free to pass this information onto others interested in Autism.

I look forward to seeing you at this event on September 25th.

Sincerely,

John Murphy
Rockland County Legislator
President, Camp Venture, Inc. Board of Directors

Here is a short fundraiser video on the Camp Venture Equestrian Therapy program.

2008 Autism Symposium
Holiday Inn Holidome & Conference Center
3 Executive Boulevard
Suffern, NY 10901
Thursday, September 25, 2008
8:00 AM – 4:00 PM
Admission:Free for pre-registrants
$25.00 for walk-in and late registrants
Contact: Betsy Saetre
(845) 638-5184

or visit http://www.rocklandautismsymposium.com/

$2500 Evaluation Fee?

Monday, August 18th, 2008

Its comical and sad really how a well known doctor with a “Clinic” named after him could charge $2,500 for an evaluation, before admitting an Autistic child into their program. Evaluate what, the files?

I mean come on here, are you here to help or just profit? I understand the need to evaluate prior to providing services but these kids come with volumes of medical folders which one needs a milk crate to carry them around. It’s not as though an Autistic kid is coming in cold, by the time one is ready for the “Clinic” they may have seen upwards of 20-30 doctors and had dozens of tests from neurological to nutritional to IQ and most likely has been engaged in thousands of hours of therapy.

Its a shame or perhaps a sham that doctors would put profits in front of services. Or maybe they just want the right kids , on the cusp of a breakthrough, in the program so it looks more effective. Who knows these days, everyone seems to be “Selling” hope these days, instead of providing it.

Ranting and Raving because I am disgusted with the notion of Medicine being big business. When was the last time a disease was cured? Polio I believe it was – why? Because drug companies make more money from treating a disease than curing a disease. Medicine should not be free enterprise, it should not be free, but it should be there when people need it.

Video Modeling … seems like a great idea!

Saturday, July 5th, 2008

Came across this video series, http://www.modelmekids.com/autism-videos.html

Anyone ever use it? What were your results? Seems like a great idea and one I have often thought about given my sons love of the video tape, or dvd.

Thanks for sharing… is there anybody out there??

The Time for School video presents social skills in the context of school. It features elementary school-aged children demonstrating appropriate social skills in the classroom, library, on the playground, and in the hallway. Each scene lasts between 30 seconds and 3 minutes, depending on the chapter. At the end of each chapter is a storyboard summarizing the rules taught.

The video is hosted by a young boy, who narrates each scene.

With narration: In the first half of the video, the visual is combined with narration and graphics that help explain the particular rule.

Without narration: In the second half of the video, the same video is repeated without narration and graphics. This allows a parent, Autism teacher, or therapist to customize the lesson the individual child and/or to test what was learned in the first viewing of the video.

Each social skill is demonstrated in more than one situation and across environments. This is useful to children with Autism and Asperger’s Syndrome because it helps with generalization of the skill taught.

Graphics and music are used to make the video appealing to children with Autism, Asperger’s Syndrome, and Nonverbal Learning Disorders. A high production value helps keep the child’s interest so that he or she will want to watch many times.

Check it out here

Discipline – Be Clear, Be Firm, Be Consistent

Friday, June 20th, 2008

by: Helen Williams

Children learn best by being given clear, firm and consistent direction from parents who are clear, firm and consistent in their approach.

How to Discipline Children by Being Clear:

Firstly find and maintain clarity within yourself and then follow through on simple, clear instructions. Clarify for your self what being clear means.

It is about being plain, obvious, and understandable in a clear, short sentence that explains exactly what you mean.

It isn’t about maybe this or maybe that.
Often parents have no idea that they chop and change their minds within minutes. To become clear about your own patterns of behavior, observe yourself and ask for your partner’s help in this.

“We are going to tidy up your toys in five minutes”, is clear and direct. Follow this with,

“Please help me tidy up your toys now” and it means just that.

Be firm with yourself about this. It doesn’t mean soon, or later, but now.

I have seen parents give out this simple instruction, then become distracted themselves by a television program, conversation or magazine. What their children observe is parents saying one thing and doing another and this gives a much distorted message. Multiplied over many times each day, is it any wonder that children cease to follow simple instructions?

How to Discipline Children by Being Firm:

Firstly find and maintain firmness for yourself and then follow through with firm clear directions in a firm, clear tone.

Clarify for your self what being firm means.

To be firm is to be certain, definite, and determined. It is also being loving, kind and calm.

It means saying no and meaning no, or saying yes and meaning yes and sticking to it. It’s about now being now. How often does your no become perhaps, later, maybe giving in, next time, soon, or alright then? This is a very common fault in how to discipline children and again it leads to numerous mixed messages for children.

Resolve within yourself and with your partner’s help to ascertain how often you are both easily swayed into changing your decisions. Are you allowing your children to manipulate you? Imagine how simple your life will become when you are clear and firm within yourself.

It is every child’s right to KNOW they can trust their parent’s boundaries. So firstly, become firm with your own boundaries and then apply this to your parenting discipline.

“It is bedtime, (bath time, meal time) in five minutes” is a clear direction. Now follow through on this.

Giving the direction in a calm, clear, firm tone of voice helps your children to understand that you mean what you say. Being firm is about being in control of both yourself and the situation.

How to Discipline Children by Being Consistent:

Firstly find and maintain consistency for yourself and then follow through with a firm, clear, consistent approach.

Clarify for yourself what being consistent means.

To be consistent is to be reliable, dependable and constant.

These words immediately convey comfort don’t they?

Let’s look at the opposite of being consistent. Contradictory, unpredictable, changeable. That’s definitely lacking in comfort and safety.

So how do you want to be seen by your children?

To begin with it can seem quite time consuming to concentrate on clear, firm, consistent guidelines. Be aware that this is very true. It takes concentrated effort and time to change old habits to new ones, but if you maintain consistency, you will be very surprised how quickly new patterns of behavior are formed.

Parenting Discipline In Summary: With parenting discipline we are teaching our children how to have self control, self discipline and to become self reliant, so they are able to make good choices for themselves.

The only way children can learn to do this is by being given the opportunities for this learning.

This means not over protecting them, or doing everything for them, but maximizing their opportunities to learn through personal experience and observation, even when this means making mistakes.

Can you see the opportunities here to change some of your own patterns of behavior into superior ones?

Clear, firm, consistent parenting is quality parenting. You learn to trust your own responses and your children are surrounded by your loving constancy.

This is the recipe for creating a happy, well adjusted family.

About The Author

Helen Williams
Editor Consistent Parenting Advice.com

Celebrity, Scmelebrity

Thursday, June 12th, 2008

Where as I appreciate any and most attention Autism receives, I feel a bit sickened by the fact that celebrity’;s seem to be leanding their names solely for the purpose of publicity.

Jenny is cool, but her book talks about she is able to afford the therapy’s that most of us only dream of or mortgage our homes for.  the therapy’s she mentions in the book are not hers, they are those of Berdard and Tomatis. Deidre Imus was a big factor in passing the Combating Autism Act, which is a lame act of empty promises. Where is she now? Robert Kennedy, now I was shocked to see how much attention he gets for helping Autism get reserach dollars, I thought he was an enviormentalist? And what is President Bill; Clintoln doing rasing money for children in far off lands, most of which wil never even see the dollasr raised when 1 in 150 children in the US are diagnosed with Autism, shame on you Bill! I don’t know, maybe I am wrong here and maybe, just maybe getting celebrity endorsement is better than none, but what have we gained since Autism is such a celebrity cause? A few best sellers or rehashed gobblee goop?

This is not a part time thing here, this is a life long condition and for most finanacial burden. What do we have to do, go on TV and get sponsors for individual families here in the states? We need insurance reforms like we see taking place in a few states like New Jersey, we need the medical community to rally here. Autism is horrible and the numbers climb ever day, why is it not being treated as an epidemic, but rather as a celebrity attention grabber!!?? What are your thoughts. Please share them and lets take the bull by the horns ourselves and Unlock Autism.

Take Care of Yourself

Monday, June 9th, 2008

It’s kind of like being on a plane, the flight attendant tells everyone in the event of an emergency … if due to a sudden drop in cabin pressure and the air mask drops, to put your mask on first so that you can assist your child and others. It carries through to taking care of someone like an Autistic Child.

Lets face it, a parent of a special needs child needs to be so much more than Special, we need to be Super, at all times and at all things. Friends are a gasp to hear of what a special needs family has to endure in order to get their kid in their home school district. Even the most basic of things in life that are taken for granted can be huge challenges. We just want our children to have the opportunity to cash in on a long and productive life.

So lets keep in mind, if we as Parents don’t take care of ourselves, we won’t be able to adequately take care of the people who are most important in our lives, for very long.

So make it a point to enjoy your life- including your physical and mental health. Create and make time to rejuvenate and replenish your mind, body and spirit. Make and go to that long overdue doctors appointment for yourself , take an hour per day to read, a day per month to Spa, a night out with friends, a weekend escape- whatever it is, do it and be strong for your kids.

Being on top of your game here means more than love, caring and understanding. Its staying healthy and wise and up with things in the move.

So make that commitment to yourself and the quality of your goodness and care will shine.

Here is a site you can look for travel ideas. ExplorerPod.com.

Health, Spiritual and Wellness try MorningCoach.com

A link to Pass Time Google Maps. Check out your house for a new perspective.

Some great tunes and channels. DeadShowPodcast.com

Seriously, do something for yourself today, so you can continue to take care of your kids tomorrow.