Unlock Autism

Finally a conference that helps those affected by Autism and is FREE.

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Pitch in $100 to support our work on behalf of those affected by autism by 11:59 PM EST on Friday, Nov. 13, and you could be chosen to receive two complimentary tickets to the Concert for Autism Speaks on Nov. 17.

http://action.autismspeaks.org/Donate100

It’s not often that you’ll find Jerry Seinfeld, the Boss, and a Beltway star like Meet the Press’s David Gregory under one roof.

But they’ll all join us on Nov. 17 at Carnegie Hall to celebrate the movement we’ve built together to change the future for all who struggle with autism spectrum disorders.

In support of that movement and our shared goal, can you pitch in now?

http://action.autismspeaks.org/Donate100

By donating today, you will support our work to fund biomedical research on autism spectrum disorders, helping people affected by them live better lives.

Side benefit: you could join us as a special guest on the 17th as we laugh, rock and cheer at Carnegie Hall.

Thank you for all that you do.

Hope to see you on the 17th,

Mark Roithmayr
President, Autism Speaks

P.S. — If you want to be sure not to miss what’s certain to be an unforgettable night, purchase a ticket for the Concert for Autism Speaks here:

http://action.autismspeaks.org/Nov17Tickets

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We recently we received this email from Autism Speaks, an organization that is doing great job these days with Autism Awareness. The email speaks of the promise of Autism Treatments being covered by insurance. I say-Why stop at New York State? Why not make it nationwide or worldwide?  Governor Plain, Senator McCain since it was part of your platform, why does the support you promised have to end with the election? President Obama and VP Biden, a good idea is a good idea. We can all do more to be supportive of Autism sufferers as we should for anyone suffering with a disease or sickness.

But seriously, can anyone imagine the cost of cancer care, surgery and treatments,  not being covered by insurance? Hundreds of thousands of dollars a month or more that I am aware of and I am 1000000% thrilled that it is mostly 100% covered by insurance. That is how it should be in the medical system we have today.

Given the high degree of clinical research data showing how treatments can help benefit Autism sufferers, essentially at every age and stage of life but especially before the age of 3, 7 and 12 years of age. The time has come to get serious about Autism and insurance companies need to step up and begin covering for the treatment of Autism, and government needs to somehow impose on either the insurance comanies or themselves a retro-active refund of coverage or tax credit for prior years spending because $20, $30, $50,000 a year or more on treatment don’t last too long even while making a very healthy six figure income .  We insure our health, not against specific diseases- at least that’s what I’ve always thought I was buying into with insurance -does anyone know how that works? Send me a comment..  Does this mean a child with Autism will never be able to be covered by insurance because of a pre-existing condition that has a real chance of being reversed with proper treatment coverage in the first place? Ok you getthe point..

Perhaps the folks I mention above need to watch the movie Sicko by Michael Moore, because it seems to me a lot of people are getting it right when it comes to medical care and it isn’t in the United States of America- which few love more than I.

Here is the email. Get Involved and Take Care.

Imagine a time when autism treatment is covered by insurance. That dream can be a reality for New York state.

Thank you! For 10 years, the autism community has been coming together for Autism Speaks. This year alone over 50,000 strong will unite in Walk Now for Autism Speaks in Long Island, New York City, Rochester, Central New York, Capital Region, Sullivan County, Greater Hudson Valley and Westchester County – raising money and awareness for Autism Speaks, the world’s largest autism advocacy organization in the world. Your time, talent, resources and donations help move ground-breaking research forward and to advance the autism cause. Dollars raised through our Walk Now for Autism Speaks program are the fuel for all of our efforts!

New York State’s time is NOW for insurance legislation. New York has the ability to pass insurance reform this session.

Over the next few weeks we will be in a critical time for this legislation and we will be asking for all of New York state to take action – calling and emailing their senators and assembly members.

“OPT IN” for news about this legislations and action alerts about how you can help. Sign up for Autism Votes today at www.autismvotes.org. If you don’t register you will not receive the action alerts.

Be part of history! Have your voice heard in Albany. Help make it possible for families to get coverage for autism.

The time for this legislation is now – and you can make it happen. You have already taken the first step of being part of our grassroots efforts in New York state by participating or supporting our Walk program. Take the next step and help the almost 130,000 families in New York state who live with autism every day get the coverage they deserve.

UPDATE – It was great to see Sarah Palin marching alongside others at the Autism Walk in Westchester, NY this weekend. Keep it up Sarah, our children need high level partners and supporters in government.

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The Assembly Standing Committee on Insurance will hold a Public Hearing regarding the Treatment of Autism Spectrum Disorder on Thursday, December 18, 2008 at 10am to discuss the management of Autism in New York State with specific attention to early diagnosis and intervention. The meeting will be held in Chancellor’s Hall in the State Education Building at 89 Washington Avenue (use the entrance on Hawk Street) in Albany.

During the hearing, testimony will be presented to evaluate programs and treatment options that already exist in this state for children with ASD, as well as evaluating what can be done to improve their living standards and assist families and caregivers with their many burdens, including financial, of dealing with Autism Spectrum Disorders.

This is the perfect opportunity for our community to demonstrate to the NYS Assembly that the autism community is dedicated to these issues – enough to show up in the winter cold and at holiday time – it’s just that important!

HOW CAN YOU HELP?

1) DRIVE TO ALBANY! This is a great chance for our community to demonstrate how important this issue is moving forward with our physical presence.  Please plan on attending.  We want to PACK THE ROOM!

2)  FORWARD THIS EMAIL FAR AND WIDE! Again, we want to pack the room so send this to anyone that you think could attend: neighbors, coworkers, family members, your child’s therapists!

3) REGISTER TO STAY INFORMED! If you haven’t signed up already, please visit the Autism Votes website and sign up to receive action alerts as we move forward on autism insurance reform in the state of New York!

Thank you for your help in this effort,

Your New York State Chapter Advocacy Chairs:

Jim Fahey, CAC – All New York State
NewYorkCAC@autismspeaks.org

Julie Rotunno, CAC – New York City
NYCCAC@autismspeaks.org

Julie Buick, CAC – Rochester
RochesterCAC@autismspeaks.org

Sharan DePalma, CAC – Westchester
WestchesterCAC@autismspeaks.org

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Dear Friends:

The Third Annual Rockland County Autism Symposium will be held on September 25, 2008 at the Holiday Inn Hotel in Suffern, NY. Once again, I am pleased to co-sponsor this symposium with Camp Venture, Inc., the Needelman Family and Mindworks, a private foundation.

We are again privileged to feature presenters from prestigious institutions, who are dedicated and distinguished experts in the field of Autism Spectrum Disorders. Our focus this year will be on new research, abnormalities in sleep, pharmacological treatment, a look at adults with Autism and more. You may view the full program and information on our speakers, above.

Last year, our Symposium set the Rockland County record for attendance at any symposium to date. We look forward to this year’s event with great anticipation, and your attendance and participation is both valued and appreciated. Through the generosity of the Needelman Family and Mindworks there is no fee for registration and a complimentary lunch will be provided. To secure a seat, please click the reservation link and do it soon! Last year, we reached maximum capacity well in advance of the event. Please feel free to pass this information onto others interested in Autism.

I look forward to seeing you at this event on September 25th.

Sincerely,

John Murphy
Rockland County Legislator
President, Camp Venture, Inc. Board of Directors

Here is a short fundraiser video on the Camp Venture Equestrian Therapy program.

2008 Autism Symposium
Holiday Inn Holidome & Conference Center
3 Executive Boulevard
Suffern, NY 10901
Thursday, September 25, 2008
8:00 AM – 4:00 PM
Admission:Free for pre-registrants
$25.00 for walk-in and late registrants
Contact: Betsy Saetre
(845) 638-5184

or visit http://www.rocklandautismsymposium.com/

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