Unlock Autism

Psychologist Simon Baron-Cohen and his colleagues at Cambridge’s Autism Research Centre have created the Autism-Spectrum Quotient, or AQ, as a measure of the extent of autistic traits in adults. In the first major trial using the test, the average score in the control group was 16.4. Eighty percent of those diagnosed with autism or a related disorder scored 32 or higher. The test is not a means for making a diagnosis, however, and many who score above 32 and even meet the diagnostic criteria for mild autism or Asperger’s report no difficulty functioning in their everyday lives. You can take the test here.

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Free offer for UnlockAutism.com users. A 20 page Photo Book, all you pay is shipping and handling. Simply use redemption code PP0509

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We recently we received this email from Autism Speaks, an organization that is doing great job these days with Autism Awareness. The email speaks of the promise of Autism Treatments being covered by insurance. I say-Why stop at New York State? Why not make it nationwide or worldwide?  Governor Plain, Senator McCain since it was part of your platform, why does the support you promised have to end with the election? President Obama and VP Biden, a good idea is a good idea. We can all do more to be supportive of Autism sufferers as we should for anyone suffering with a disease or sickness.

But seriously, can anyone imagine the cost of cancer care, surgery and treatments,  not being covered by insurance? Hundreds of thousands of dollars a month or more that I am aware of and I am 1000000% thrilled that it is mostly 100% covered by insurance. That is how it should be in the medical system we have today.

Given the high degree of clinical research data showing how treatments can help benefit Autism sufferers, essentially at every age and stage of life but especially before the age of 3, 7 and 12 years of age. The time has come to get serious about Autism and insurance companies need to step up and begin covering for the treatment of Autism, and government needs to somehow impose on either the insurance comanies or themselves a retro-active refund of coverage or tax credit for prior years spending because $20, $30, $50,000 a year or more on treatment don’t last too long even while making a very healthy six figure income .  We insure our health, not against specific diseases- at least that’s what I’ve always thought I was buying into with insurance -does anyone know how that works? Send me a comment..  Does this mean a child with Autism will never be able to be covered by insurance because of a pre-existing condition that has a real chance of being reversed with proper treatment coverage in the first place? Ok you getthe point..

Perhaps the folks I mention above need to watch the movie Sicko by Michael Moore, because it seems to me a lot of people are getting it right when it comes to medical care and it isn’t in the United States of America- which few love more than I.

Here is the email. Get Involved and Take Care.

Imagine a time when autism treatment is covered by insurance. That dream can be a reality for New York state.

Thank you! For 10 years, the autism community has been coming together for Autism Speaks. This year alone over 50,000 strong will unite in Walk Now for Autism Speaks in Long Island, New York City, Rochester, Central New York, Capital Region, Sullivan County, Greater Hudson Valley and Westchester County - raising money and awareness for Autism Speaks, the world’s largest autism advocacy organization in the world. Your time, talent, resources and donations help move ground-breaking research forward and to advance the autism cause. Dollars raised through our Walk Now for Autism Speaks program are the fuel for all of our efforts!

New York State’s time is NOW for insurance legislation. New York has the ability to pass insurance reform this session.

Over the next few weeks we will be in a critical time for this legislation and we will be asking for all of New York state to take action - calling and emailing their senators and assembly members.

“OPT IN” for news about this legislations and action alerts about how you can help. Sign up for Autism Votes today at www.autismvotes.org. If you don’t register you will not receive the action alerts.

Be part of history! Have your voice heard in Albany. Help make it possible for families to get coverage for autism.

The time for this legislation is now - and you can make it happen. You have already taken the first step of being part of our grassroots efforts in New York state by participating or supporting our Walk program. Take the next step and help the almost 130,000 families in New York state who live with autism every day get the coverage they deserve.

UPDATE - It was great to see Sarah Palin marching alongside others at the Autism Walk in Westchester, NY this weekend. Keep it up Sarah, our children need high level partners and supporters in government.

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Autism Speaks, the nation’s largest autism science and advocacy organization, and Unlock Autism today applauded Representatives Mike Doyle (D-PA), Chris Smith (R-NJ), Eliot Engel (D-NY), and Hank Johnson (D-GA) for their introduction of a House companion bill to the Senate’s Autism Treatment Acceleration Act (ATAA), which was introduced last month by Senators Richard Durbin (D-IL), Robert Casey (D-PA), and Robert Menendez (D-NJ). Like the Senate version, the House version of the ATAA (H.R. 2413) is comprehensive federal legislation that addresses several critical challenges facing the autism community, including increased funding for scientific research, treatment and services. The ATAA incorporates provisions from the Expanding the Promise of Individuals with Autism Act (EPIAA), originally proposed by Representatives Doyle, Smith, Engel, and former-Representative Chip Pickering.

A welcome sign of relief  to many who routinely spend $30-$50k on therapy’s - not even considered for reimbursement by insurance companies.

As in the Senate’s ATAA bill, a key section of the House bill requires all insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder (ASDs), including coverage of Applied Behavior Analysis (ABA) therapy - a medically-necessary, evidence-based autism treatment. While the number of states that have enacted comprehensive autism insurance reform legislation has grown to ten, most state insurers are still allowed to specifically exclude coverage for these critical services, which can cost upward of $50,000 a year - well beyond the means of most families.

The House version of the bill also addresses the unique needs of adults with ASDs, creating a demonstration project with one-year planning grants and multi-year implementation grants for the provision of service for adults with autism. In addition, it creates the Network for Autism Spectrum Disorders Research and Services aimed at accelerating the dissemination and utilization of critical, new information, moving it from “bench to bedside” as quickly as possible.

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What are thre best schools for Autism services? The consensus seems to be larger, mostly Northeast cities but there is no
one resource for researching or selecting the best school options for your child.

I have been searching for the past 4 years now, finally I present a few posts I have found that offer a glimmer of information.

In my experience it comes down to knowing your rights and always have an advocate in the room with you. We live in NY, we found the services
are varied form district to district and have come a long way. In the end though, there is no plan for my child past 6th grade, his options are Boces
or some place far, far away from home.  If you do find a good site, please post it so we can help spread the word.

http://answers.yahoo.com/question/index?qid=20061109092801AAiVpeX

http://www.city-data.com/forum/special-needs-children/300371-best-school-districts-us-autistic-children-4.html

http://www.city-data.com/forum/new-jersey/468294-best-special-education-autism-schools-nj.html

http://www.child-autism-parent-cafe.com/autism-schools.html

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More people are looking to store Umbilical Cord blood in hopes of having a magic formula for a cure if a tragic disease were to strike a family.

A few company’s have been collecting and storing cord blood for the past 6 years.  Here is an interesting article on the subject. In my view, its worth the cost. how could you not store something which could save your life down the road or help to cure a disease such as Autism..?

Should you wish that your baby is credited with the title of a Good Samaritan as soon as he is born? If so, one way is to donate blood from your baby’s umbilical cord. The umbilical cord is usually considered waste after a baby is born (once separated from the mother). The umbilical cord stump peels off the body of the newborn baby within 12-15 days of the baby being born.

But, the umbilical cord can be put to good use by taking blood from the umbilical cord before discarding it. This blood can be extremely helpful to leukemia patients and patients of other life-critical diseases. Umbilical cord blood is different from embryo blood in the sense that this blood is taken from the umbilical cord and the placenta after the birth of the baby.

Why is cord blood critical to various medical functions?

* Cord blood is extremely useful for individuals/patients who need a transplant done quickly. Cord blood is easily accessible as they are stored in units and ready-for-use.

* Many surgeries require patients to find a matched bone marrow donor. Bone marrow blood, especially one matching the donor and the acceptor’s RH level are extremely difficult to find. Cord blood can be used as an effective replacement in these cases.

* Many individuals/communities have a very rare group of blood RH. Patients from such communities find it increasingly difficult to find blood matching their blood indicators. Cord blood can be used to donate blood to these patients as they do not require to be matched with the acceptor’s blood indicator.

Umbilical cord blood - Use in transplant surgeries

Cord blood considered suited for transplantation purposes are typed on tissues, frozen and stored. A liquid Nitrogen refrigerator is used in sub-zero temperatures to store the cord blood for transplantation.

What factors are considered for patients needing transplant surgeries?

* Type of transplant required - Use of cord blood in transplant surgeries is extremely dependant on the type of transplantation required to be done. Cord blood cells are extremely useful in treating certain life-threatening diseases, not all of them.

* Adequate blood forming cells - Cord blood units having inadequate blood forming cells are not considered for transplant surgeries. A cord blood unit having umbilical cord blood is considered effective for transplantation purposes only if it has adequate blood forming cells.

Close to 6000 patients suffering from leukemia, lymphoma and other life-threatening diseases are constantly in need of cord blood to meet their blood acceptance needs. Cord blood donated by a newborn baby is used for bone marrow surgeries or cord transplants.

A simple act of donating umbilical cord blood can prove to be a life-saver for many patients. Irrespective of the race of the baby, the mother can decide to donate the umbilical cord blood as early as the 34th week into pregnancy.

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Although in it’s too early, this Autism Fever and the Brain research is very promising and holds a lot of hope for Autism sufferers.

ScienceDaily (Apr. 2, 2009) - Scientists at Albert Einstein College of Medicine of Yeshiva University have proposed a sweeping new theory of autism that suggests that the brains of people with autism are structurally normal but dysregulated, meaning symptoms of the disorder might be reversible.

The central tenet of the theory, published in the March issue of Brain Research Reviews, is that autism is a developmental disorder caused by impaired regulation of the locus coeruleus, a bundle of neurons in the brain stem that processes sensory signals from all areas of the body.

The new theory stems from decades of anecdotal observations that some autistic children seem to improve when they have a fever, only to regress when the fever ebbs. A 2007 study in the journal Pediatrics took a more rigorous look at fever and autism, observing autistic children during and after fever episodes and comparing their behavior with autistic children who didn’t have fevers. This study documented that autistic children experience behavior changes during fever.

“On a positive note, we are talking about a brain region that is not irrevocably altered. It gives us hope that, with novel therapies, we will eventually be able to help people with autism,” says theory co-author Mark F. Mehler, M.D., chairman of neurology and director of the Institute for Brain Disorders and Neural Regeneration at Einstein.

Autism is a complex developmental disability that affects a person’s ability to communicate and interact with others. It usually appears during the first three years of life. Autism is called a “spectrum disorder” since it affects individuals differently and to varying degrees. It is estimated that one in every 150 American children has some degree of autism.

Einstein researchers contend that scientific evidence directly points to the locus coeruleus-noradrenergic (LC-NA) system as being involved in autism. “The LC-NA system is the only brain system involved both in producing fever and controlling behavior,” says co-author Dominick P. Purpura, M.D., dean emeritus and distinguished professor of neuroscience at Einstein.

The locus coeruleus has widespread connections to brain regions that process sensory information. It secretes most of the brain’s noradrenaline, a neurotransmitter that plays a key role in arousal mechanisms, such as the “fight or flight” response. It is also involved in a variety of complex behaviors, such as attentional focusing (the ability to concentrate attention on environmental cues relevant to the task in hand, or to switch attention from one task to another). Poor attentional focusing is a defining characteristic of autism.

“What is unique about the locus coeruleus is that it activates almost all higher-order brain centers that are involved in complex cognitive tasks,” says Dr. Mehler.

Drs. Purpura and Mehler hypothesize that in autism, the LC-NA system is dysregulated by the interplay of environment, genetic, and epigenetic factors (chemical substances both within as well as outside the genome that regulate the expression of genes). They believe that stress plays a central role in dysregulation of the LC-NA system, especially in the latter stages of prenatal development when the fetal brain is particularly vulnerable.

As evidence, the researchers point to a 2008 study, published in the Journal of Autism and Developmental Disorders, that found a higher incidence of autism among children whose mothers had been exposed to hurricanes and tropical storms during pregnancy. Maternal exposure to severe storms at mid-gestation resulted in the highest prevalence of autism.

Drs. Purpura and Mehler believe that, in autistic children, fever stimulates the LC-NA system, temporarily restoring its normal regulatory function. “This could not happen if autism was caused by a lesion or some structural abnormality of the brain,” says Dr. Purpura.

“This gives us hope that we will eventually be able to do something for people with autism,” he adds.

The researchers do not advocate fever therapy (fever induced by artificial means), which would be an overly broad, and perhaps even dangerous, remedy. Instead, they say, the future of autism treatment probably lies in drugs that selectively target certain types of noradrenergic brain receptors or, more likely, in epigenetic therapies targeting genes of the LC-NA system.

“If the locus coeruleus is impaired in autism, it is probably because tens or hundreds, maybe even thousands, of genes are dysregulated in subtle and complex ways,” says Dr. Mehler. “The only way you can reverse this process is with epigenetic therapies, which, we are beginning to learn, have the ability to coordinate very large integrated gene networks.”

“The message here is one of hope but also one of caution,” Dr. Mehler adds. “You can’t take a complex neuropsychiatric disease that has escaped our understanding for 50 years and in one fell swoop have a therapy that is going to reverse it - that’s folly. On the other hand, we now have clues to the neurobiology, the genetics, and the epigenetics of autism. To move forward, we need to invest more money in basic science to look at the genome and the epigenome in a more focused way.”

Science Daily is an excellent site for Autism related research, support them so they can support us..

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Can leaching plastics be involved with the rise in Autism? In m y view ABSOLUTELY! These days everything which was once housed in glass is now in plastic. Plastic water bottles embossed with company logo’s straight from the  capital of lead poisining - China, fill almost every corporate portfolio of chatzke giveaways. Its time to rid ourselves of plastics and go back to glass. Rep Charles Schumer of NY has just recently proposed a ban of BPA’s in any baby product, at least someone is aware and doing something about it!
BPA or Bisphenol A is Everywhere - Are We Safe?
BPA otherwise known as Bisphenol A is a compound widely used in the manufacture of plastics and epoxy resins. This
industrial chemical has created quite a stir since 2007 and is still a subject of intense controversy. BPA can be found
in plastics around us and is in the products that we use every day, from DVDs to eyeglasses to mobile phones.
Normally, BPA is harmless, that is, until it gets in contact with food and drinks and leaches out. According to
a report of the National Toxicology Program (NTP) of the U.S. National Institutes of Health (NIH), “the primary
source of exposure to BPA for most people is through the diet…BPA in food and beverages accounts for the majority
of daily human exposure.”

However, not all plastics contain BPA. Plastics are categorized into 7 types according to the recycling process
and the classification codes are located at the bottom of plastic containers. According to NTP, only plastic no. 7,
designated as “other” contains BPA. Incidentally there are other organizations which report that BPA is also found in
plastic no. 3.

Some of the adverse effects that BPA may cause include the following:

BPA is an endocrine disrupting chemical (EDC) that mimics the neurotoxic properties of the hormone estrogen.
According to the Pediatric Environmental Health Specialty Unit (PEHSU) of the Association of Occupational and
Environmental Clinics (AOEC). “BPA has been associated with increases in developmental disorders of the brain and
nervous system in animals. These developmental disorders in animals are like problems such as ADHD (attention deficit
hyper-reactivity disorder) in humans.”

PEHSU reports that “BPA may cause changes in cells in breasts, the uterus, and the prostate which can increase
risk of cancers.” The September 2008 report of NTP suggests that BPA exposure may be linked to prostate and brain
cancer.

The NTP report also says that BPA can cause behavioral problems in fetuses, infants and children. It can induce
early onset of puberty in girls and can cause reproductive disorders.

High BPA levels have been linked to increased risk for cardiovascular disease and diabetes.

It comes as no surprise that these findings have generated a strong anti-BPA movement worldwide. To understand the
controversy behind BPA, let’s look at some of the events that have occurred in the last two years.

March 2007. A class action lawsuit was filed against baby bottle manufacturers on behalf of Californian babies who
may have been adversely affected by BPA.

November 2007. Researchers from the University of Cincinnati published an article in Toxicology Letters
(online edition) reporting that BPA is leaching out of the polycarbonate bottles popularly used as drinking bottles.
This report led to Nalgene plastic bottles taken off the shelves in Canada.

The Environmental Working Group (EWG) tested infant formulas for BPA and detected BPA in some of the most
popular brands. When questioned, 4 out of the top 5 companies admitted using BPA in their packaging.

January 2008. The National Center for Environmental Health of the Centers for Disease Control and Prevention (CDC)
published a paper which reported that BPA was detected in the urine of 92.6% of 2,517 participants during the
2003-2004 National Health and Nutrition Examination Survey (NHNES).

April 2008. Canada announced its plans to ban
BPA-containing bottles. The US FDA established an
agency-wide BPA task force to facilitate cross-agency
review of current research and new information on BPA for
all FDA regulated products.

May 2008. In a health call, “leaders of the Committee on
Energy and Commerce threatened to subpoena the Food and
Drug Administration (FDA) for records the agency used in
determining that the chemical bisphenol A (BPA) was safe
for use in making infant formula liners and other products
intended for infants and children”, according to a report
in the Journal of the American Medical Association (JAMA).

July 2008. The European Food Safety Authority’s AFC Panel
declared that human exposure to BPA is too low to cause any
real harm. According to the panel’s report, the human body
rapidly metabolises and eliminates BPA out of the body.
September 3, 2008

The National Toxicology Program (NTP) issued a report on
BPA, expressing the following concerns: - “some concern”
for effects on the brain, behavior, and prostate gland in
fetuses, infants, and children at current human exposures
to BPA. - “minimal concern” for effects on the mammary
gland and an earlier age for puberty for females, in
fetuses, infants, and children at current human exposures
to BPA. - “negligible concern” that exposure of pregnant
women to BPA will result in fetal or neonatal mortality,
birth defects, or reduced birth weight and growth in their
offspring. - “negligible concern” that exposure to BPA will
cause reproductive effects in non-occupationally exposed
adults and “minimal concern” for workers exposed to higher
levels - in occupational settings. “Some concern”
represents a midpoint in a 5-point scale of concern, with
“serious concern” as the highest and “negligible concern”
as the lowest.

September 2008. Researchers at the University of Exeter
(UK) re-examined the previously mentioned NHNES BPA urine
data. They found that high levels of BPA in the urine were
associated with chronic diseases such as cardiovascular
disorders, diabetes, and kidney problems. The BPA
Subcommittee of the Science Board to the US FDA met on
September 16, 2008 to discuss BPA assessment.

October 2008. Two studies reported research results in mice
exposed to BPA. One study reported that pregnant mice
exposed to BPA suffered from altered the cellular structure
of the breasts. A second study showed that female mice’s
exposure to low-dose BPA during fetal life or adulthood
caused alterations in maternal behaviour.

Researchers at University of Cincinnati report that BPA is
linked to chemotherapy resistance. The study demonstrated
that “BPA does not increase cancer cell proliferation like
DES [cancer-promoting compound called diethylstilbestrol]
does. It’s actually acting by protecting existing cancer
cells from dying in response to anti-cancer drugs, making
chemotherapy significantly less effective.”

The Canadian government announced the drafting of
regulations that will prohibit the import, sale and
advertising of polycarbonate baby bottles that contain BPA.

Based on a review by a subcommittee, the US Food and Drug
Administration (US FDA) stated that “consumers should know
that, based on all available evidence, the present
consensus among regulatory agencies in the United States,
Canada, Europe, and Japan is that current levels of
exposure to BPA through food packaging do not pose an
immediate health risk to the general population, including
infants and babies.” In addition, the US FDA thinks the
Canadian restrictions on BPA are “out of an abundance of
caution.”

January 2009. The US FDA and Health Canada’s Health
Products and Food Branch hosted a meeting of
representatives of U.S and Canadian manufacturers and users
of food packaging materials containing BPA. They discussed
what is to be done to help minimize the levels of BPA in
food. The meeting was also part of FDA’s efforts to assist
the manufacturing industry in its voluntary BPA reduction
efforts.

So what can we do to protect ourselves from BPA?

Recommendations from PEHSU - Avoid plastics with symbol # 3
(PVC or polyvinyl), symbol # 6 (PS or polystyrene foam) and
symbol #. Do not microwave food/beverages in plastic. Do
not microwave or heat plastic cling wraps. Do not place
plastics in the dishwasher. If using hard polycarbonate
plastics (water bottles/baby bottles/sippy cups), do not
use for warm/hot liquids. Use safe alternatives such as
glass or polyethylene plastic (symbol #1). Avoid canned
foods when possible (BPA may be used in can linings). Look
for labels on products that say “phthalate-free” or
“BPA-free”.

Recommendations from the Center for Science in the Public
Interest (CSPI): Avoid plastic containers made of
polycarbonate. Any bottle or container made of
polycarbonate has the recycling No. 7 on the bottom. When
possible, prepare or store food—especially hot foods
and liquids—in glass, porcelain, or stainless steel
dishes or containers. If you have polycarbonate plastic
food containers, don’t microwave them. The plastic is more
likely to break down and release BPA when it’s repeatedly
heated to high temperatures. Don’t wash polycarbonate
plastic containers in the dishwasher. The detergent may
break down the plastic, which could release BPA. Use infant
formula bottles that are made of glass or BPA-free plastic.
BornFree (newbornfree.com) is one of many companies that
make them. When you can, replace canned foods with foods
that are fresh, frozen, or packaged in aseptic
(shelf-stable) boxes. At least one manufacturer—Eden
Foods—lines its cans with a BPA alternative made from
plant extracts. A good alternative to polycarbonate is
polyethylene terephthalate (PETE), which has the recycling
No. 1 on the bottom. Avoid older versions of Delton dental
sealant…Most dental sealants are free of BPA. However,
older Delton sealants contain a compound that breaks down
into BPA, mostly during the first day after it comes into
contact with saliva.

—————————————————-
The article BPA or Bisphenol A is Everywhere - Are We Safe?
may be found in it’s entirety with references and links on
http://HealthWorldNet.com .

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I believe it is safe to say this could work with any kid who loves Spidey, not just a person with Autism.

BANGKOK (AFP) - A Thai fireman turned superhero when he dressed up as comic-book character Spider-Man to coax a frightened eight-year-old from a balcony, police said Tuesday.

Teachers at a special needs school in Bangkok alerted authorities on Monday when an autistic pupil, scared of attending his first day at school, sat out on the third-floor ledge and refused to come inside, a police sergeant told AFP.

Despite teachers’ efforts to beckon the boy inside, he refused to budge until his mother mentioned her son’s love of superheroes, prompting fireman Sonchai Yoosabai to take a novel approach to the problem.

The rescuer dashed back to his fire station and made a quick change into a Spider-Man costume before returning to the boy, he said.

“I told him Spider-Man is here to rescue you, no monsters are going to attack you and I told him to walk slowly towards me as running could be dangerous,” Somchai told local television.

The young boy immediately stood up and walked into his rescuer’s arms, police said.

Somchai said he keeps the Spider-Man costume and an outfit of Japanese television character Ultraman at the station in order to liven up school fire drills.

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