Unlock Autism

Wanted to repost this article we shared afew months back. I was shocked that the baby formula I was ent home with from the hospital and provided by Similiac used PVC and was stamped with code #3. Why are we still using this stuff?

It’s worth avoiding all plastics if you can. You can identify a plastic by looking at the recycling code number that appears inside a triangle at the bottom of many containers.

Resin code #3 - Polyvinyl chloride (PVC) can leach phthalates, known male reproductive toxicants. It can be identified by code 3. One way to avoid it in the kitchen is by choosing plastic wrap made from polyethylene rather than PVC. If a box is not labeled, find a brand that is or call the manufacturer.

Resin code #6 - Polystyrene is used in Styrofoam products. It may leach styrene (a neurotoxin) when it comes into contact with hot, acidic, or fatty foods. It’s marked with recycling code 6.

Resin code #7 - Polycarbonate can leach bisphenol-A (BPA), an endocrine disruptor associated with a long list of health concerns. Baby bottles, “sippy” cups, 5-gallon water jugs, and reusable beverage bottles are typically made out of this plastic. Products may be marked with recycling code 7 (also includes any plastic that doesn’t fit into the 1 to 6 recycling code categories) and/or the letters “PC.”

The following plastics are considered safest for food storage. Glass and stainless steel are the best options as they do not have pores and bacteria catching scratches.

Resin code #1 - Polyethylene terephthalate ethylene (PETE), code 1.

Resin code #2 - High-density polyethylene (HDPE), code 2.

Resin code #4 - Low-density polyethylene (LDPE), code 4.

Resin code #5 - Polypropylene (PP), code 5.

Useful tips for when you do use plastic..

* Don’t microwave food plastic containers. HEat creates a good environment for chemicals to be re-activated and to leach out when plastic is heated. “Microwaveable plastic” doesn’t guarantee anything. Cover foods in the microwave with wax paper or a plate. If you do use plastic wrap, then make sure it doesn’t touch the food.

* Avoid putting hot foods in plastic containers. Let leftovers cool off before storing them in plastic.

* Take good care of plastics by not washing them with harsh chemicals, and dispose of scratched and worn containers. Just as your vet suggests no plastic bowls for your pets, we should follow the same advice.

Not sure about you, but i dont recall seeing plastic bottles around when I was a kid, it was glass and that was it. Now with nearly every child drinking form plastic and then followed up with nearly every adult drinking form a Poland Spring plastic water botle, its no wonder we are all poisopning ourselves! Use glass or stainless steel, avoid plastic!

For more green tips, visit Green and Ready

We use a product called BornFree made of “Glasstic” out of canada, one of the first PBA free plastic products on the market, but I would still prefer a glass baba for my kid. Here is a link to Consumer Reports story on this subject

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Looks like we are making progress..

President-Elect Obama has drafted comprehensive autism legislation, including a section addressing a broad based federal autism insurance mandate.

In his Presidential campaign statement on Autism Spectrum Disorders, President-Elect Obama committed to bringing autism insurance reform to the entire nation. The statement stated that Obama and Biden “will mandate insurance coverage of autism treatment and will also continue to work with parents, physicians, providers, researchers, and schools to create opportunities and effective solutions for people with ASD.” For the complete campaign statement, and to read the draft legislation, go to http://www.autismvotes.org.

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Please be true to your word and fund more in depth research regarding the causes and prevention of Autism

and other PDD’s   1 in 150 is an epidemic of the worst proportions as it affects defenseless children and can destroy families, wreak hvvac on local school board budgets and community taxes. We need solutions now.

Here are some suggestions, Investigate and report back within 12 months time any connection regarding

- Plastic PBA’s, Cell Phone Signals and Mercury laced shots

- Providing economic support for families who actively seek and complete therapy’s currently not covered under health insurance

- Providing economic support on a per child basis still in the school system for providing a more precise and personalized education platform and goals to work towards. I do well for my family but paying $10-$25,000 for treatments, or more per year is just a bit too much to afford.

- Increasing regulation and oversight over Autism related treatments, too much hope being sold with snake oil out there

- Creating a national database of what works for which conditions best, right now its trial and error over and over again

- Provide $10 billion in funding Autism research asap, at both the commercial and holistic levels.

12 months is aggressive, but we need to fast track this as it continues to grow in numbers both in terms of those afflicted, and those it affects.

Do it Barrack, help our children and make this your legacy while still in office, not in the last few weeks of office.  Do it now..

You may recall seeing the Eye Chart last time you visited the doctor. Today it is also common to see the entire human body chart, inner ear chart, neck, back and knee joint models and other props for the doctor to use with patients when explaining our all too common ailments.

With the explosive growth of Autism rates, can we expect to see more of this chart appearing in a pediatricians office near you?

During the 3rd Presidential Debate, held at Hofstra University recently, both candidates spoke about autism. In response to a question from CBS News’ Bob Schieffer, “why would the country be better off if your running mate became president” the senators made the following remarks:

Sen. McCain: …She (Sarah Palin) also understands special needs families. She understands that autism is on the rise. We’ve got to find out what’s causing it and we’ve got to reach out to these families and help them and give them the help they need as they raise these very special needs children. She understands that better than almost any American that I know. I’m proud of her.

Sen. Obama: …I think it’s very commendable the work she (Sarah Palin) has done on behalf of special needs. I agree with that John. I do just want to point out that autism for example or other special needs will require some additional funding if we’re going to get serious in terms of research. That is something that every family that advocates on behalf of disabled children talks about. And if we have an across the board spending freeze we’re not going to be able to do it.

In response to the Bob Schieffer’s question “Do you think the federal government should play a larger role in the schools and I mean federal money?” the senators made the following remarks:

Sen. Obama: I do think it is important for the federal government to step up and help local school districts do the things they need to do….We did the right thing by saying every school should provide education for children with special needs but we never followed through on the promise of funding, and that left local school districts very cash strapped.

Sen. McCain: In town hall meeting after town hall meeting, parents come with kids, children, precious children who have autism. Sarah Palin knows about that better than most. And we’ll find, and we’ll spend the money on research to find the cause of autism, and we’ll care for these young children and all Americans will open their wallets and their hearts to do so.

We finally may have some real representation in the government with either candidate.  Palin knows the pain personally, Obama seems to understand  the need for federal funding of local schools. Should be interesting how this plays out, lets keep the Special Needs topic front and center.

Dear Friends:

The Third Annual Rockland County Autism Symposium will be held on September 25, 2008 at the Holiday Inn Hotel in Suffern, NY. Once again, I am pleased to co-sponsor this symposium with Camp Venture, Inc., the Needelman Family and Mindworks, a private foundation.

We are again privileged to feature presenters from prestigious institutions, who are dedicated and distinguished experts in the field of Autism Spectrum Disorders. Our focus this year will be on new research, abnormalities in sleep, pharmacological treatment, a look at adults with Autism and more. You may view the full program and information on our speakers, above.

Last year, our Symposium set the Rockland County record for attendance at any symposium to date. We look forward to this year’s event with great anticipation, and your attendance and participation is both valued and appreciated. Through the generosity of the Needelman Family and Mindworks there is no fee for registration and a complimentary lunch will be provided. To secure a seat, please click the reservation link and do it soon! Last year, we reached maximum capacity well in advance of the event. Please feel free to pass this information onto others interested in Autism.

I look forward to seeing you at this event on September 25th.

Sincerely,

John Murphy
Rockland County Legislator
President, Camp Venture, Inc. Board of Directors

Here is a short fundraiser video on the Camp Venture Equestrian Therapy program.

2008 Autism Symposium
Holiday Inn Holidome & Conference Center
3 Executive Boulevard
Suffern, NY 10901
Thursday, September 25, 2008
8:00 AM - 4:00 PM
Admission:Free for pre-registrants
$25.00 for walk-in and late registrants
Contact: Betsy Saetre
(845) 638-5184

or visit http://www.rocklandautismsymposium.com/

This is the idiot who caused millions of dollars and years of research to go to waste. All this for 55,000 British Pound Sterling. Where are is the tar and feathers?  What has Elsevier done to make it up to all of our children ? How about $100 million in Autism funding ?

The editor of the Lancet said last night that the scientific paper which sparked the row about the safety of the MMR vaccine would not have been published if senior staff had been aware that its lead author had not revealed “a serious conflict of interest”.

Richard Horton said that Andrew Wakefield, the doctor whose research suggested a link between the triple jab against measles, mumps and rubella and autism, had made “an important error of judgement” in failing to say he had received an alleged £55,000 from the Legal Aid Board, now the Legal Services Commission to investigate grounds for legal action by parents of allegedly vaccine-damaged children.

Dr Wakefield’s article, published in the medical journal six years ago, caused a drop in uptake of the MMR vaccine and protracted argument. It also made the author a pariah in the eyes of the medical establishment.

Two months ago senior doctors boycotted a televised debate on the vaccine, scheduled to run after a Channel 5 drama documentary about Dr Wakefield’s work, as they regarded it as biased and emotive.

Dr Wakefield, who worked at the Royal Free Hospital, in north London, when the paper was published, denied last night that the authors of the report had any knowledge that one child investigated for the study reported in the Lancet had a legal aid certificate at the time.

Investigations as a result of allegations made to the Lancet in the past few days suggest that as many as four of the 12 reported cases may have been on a list of 10 children on whom Dr Wakefield was commissioned by a solicitor to make studies. The exact number has still to be confirmed.

The two studies were completely separate and money from the Legal Aid Board was paid into a special research account administered by the hospital trust.

Dr Wakefield said: “Whether parents perceived an association with MMR vaccine or not, whether parents had approached lawyers with an intent to seek legal redress, or whether children were in receipt of legal funding or not, had no bearing whatsoever on their selection for clinical investigation of inclusion in the Lancet report.”

The paper in fact did not claim to prove a link between the MMR vaccination and autism, although Dr Wakefield said at its launch that he thought parents might be advised to give the jabs separately.

Mr Horton refused to reveal last night who had made six serious allegations of research misconduct. Three were not accepted.

“We regret that aspects of funding for parallel and related work and the existence of ongoing litigation that had been known during clinical evaluation of the children reported in the 1998 Lancet paper were not disclosed to editors.

“We judge that all this information would have been material to our decision-making about the paper’s suitability, credibility and validity for publication.”

The Lancet would publish an editorial commentary and statements from researchers involved in the 1998 study “as soon as possible”.

Mr Horton underlined how seriously he viewed the case. “In my view, not to disclose such a serious conflict of interest was an important error of judgement and conflicted with our guidelines on conflict of interest at the time.

“It is always very difficult with hindsight, but if we had known Dr Wakefield was not only lead investigator in the Lancet paper but also had been commissioned by the Legal Advisory Board, I am sure our view would have been this was a fatal conflict of interest and we would not have published the paper.”

Dr Wakefield’s co-authors have become increasingly critical, saying they believe in the safety of the MMR. Dr Simon Murch and colleagues have continued to research links between inflammation of the gut and autism and believe there is evidence of an association.

You know, I had heard it was a disgruntled ex employee of a Pharmaceutical company that started this whole MMR connection, if that is true this person should be tarred an feathered and tied to a whipping post in the village square for wasting so many valuable years of research down a wrong street, years that could have been used to find a cause and cure. Instead, we have wasted big time dollars and time accusing and defending.. What a shame, Now this article appeared int he NY Times claiming that the researchers had a conflict of interest who published the findings.. all this for what, a Gov’t grant or a mention in some Journal?

“Meanwhile, the original paper’s publisher — The Lancet — complained in 2004 that the lead author had concealed a conflict of interest. Ten of his co-authors retracted the paper’s implication that the vaccine might be linked to autism. Three of the authors are now defending themselves before a fitness-to-practice panel in London on charges related to their autism research.

Sadly, even after all of this, many parents of autistic children still blame the vaccine. The big losers in this debate are the children who are not being vaccinated because of parental fears and are at risk of contracting serious — sometimes fatal — diseases.”

How about we shift towards researching things introduced into the environment that mirror the rise of Autism, Such as; Cell Phones, PC’s, Plastic Everything, Teflon, Hormone use in the food supply, even down to Hydro-Ponic Marijuana. Doesnt anyone else wonder about these things and their possible place in the cause of the Autism Epidemic? Anyone there?

Ten years ago, a clinical research paper triggered widespread and persistent fears that a combined vaccine that prevents measles, mumps and rubella — the so-called MMR vaccine — causes autism in young children. That theory has been soundly refuted by a variety of other research over the years, and now a new study that tried to replicate the original study has provided further evidence that it was a false alarm. Read More from this New York Times article

Its comical and sad really how a well known doctor with a “Clinic” named after him could charge $2,500 for an evaluation, before admitting an Autistic child into their program. Evaluate what, the files?

I mean come on here, are you here to help or just profit? I understand the need to evaluate prior to providing services but these kids come with volumes of medical folders which one needs a milk crate to carry them around. It’s not as though an Autistic kid is coming in cold, by the time one is ready for the “Clinic” they may have seen upwards of 20-30 doctors and had dozens of tests from neurological to nutritional to IQ and most likely has been engaged in thousands of hours of therapy.

Its a shame or perhaps a sham that doctors would put profits in front of services. Or maybe they just want the right kids , on the cusp of a breakthrough, in the program so it looks more effective. Who knows these days, everyone seems to be “Selling” hope these days, instead of providing it.

Ranting and Raving because I am disgusted with the notion of Medicine being big business. When was the last time a disease was cured? Polio I believe it was - why? Because drug companies make more money from treating a disease than curing a disease. Medicine should not be free enterprise, it should not be free, but it should be there when people need it.

My wife and I are blessed with 2 children and are expecting our third in October. We have been contemplating storing the umbilical cord for future use for someone in the family, should one of us become sick or if a break through occurs and we can help those with Autism Spectrum Disorder with this invaluable resource. We have decided it is worth the expense - $4,000 for a 20 year storage. Has anyone out there done this and actually used the blood to harvest stem cells? if so, please write to us.

This story hit the web recently, it helps to validate our decision for sure.

Scientists Grow Stem Cells For Parkinson’s, Down Syndrome, Other Disorders

By Stephanie Nano, Associated Press

AP - Harvard scientists say they have created stems cells for 10 genetic disorders, which will allow researchers to watch the diseases develop in a lab dish.
This early step, using a new technique, could help speed up efforts to find treatments for some of the most confounding ailments, the scientists said.
The new work was reported online Thursday in the journal Cell, and the researchers said they plan to make the cell lines readily available to other scientists.
Dr. George Daley and his colleagues at the Harvard Stem Cell Institute used ordinary skin cells and bone marrow from people with a variety of diseases, including Parkinson’s, Huntington’s and Down syndrome to produce the stem cells.
The new cells will allow researchers to “watch the disease progress in a dish, that is, to watch what goes right or wrong,” Doug Melton, co-director of the institute, said during a teleconference.
“I think we’ll see in years ahead that this opens the door to a new way to treating degenerative diseases,” he said.
The new technique reprograms cells, giving them the chameleon-like qualities of embryonic stem cells, which can morph into all kinds of tissue, such as heart, nerve and brain. As with embryonic stem cells, the hope is to speed medical research.
Research teams in Wisconsin and Japan were the first to report last November that they had reprogrammed skin cells, and that the cells had behaved like stem cells in a series of lab tests. Just last week, another Harvard team of scientists said they reprogrammed skin cells from two elderly patients with ALS, or Lou Gehrig’s disease, and grew them into nerve cells.
Melton said the new disease-specific cell lines “represent a collection of degenerative diseases for which there are no good treatments and, more importantly, no good animal models for the most part in studying them.”
A new laboratory has been created to serve as a repository for the cells, and to distribute them to other scientists researching the diseases, Melton said.
“The hope is that this will accelerate research and it will create a climate of openness,” said Daley.
He expects stem cell lines to be developed for many more diseases, noting, “this is just the first wave of diseases.” Other diseases for which they created stem cells are Type 1, or juvenile, diabetes; two types of muscular dystrophy, Gaucher disease and a rare genetic disorder known as the “bubble boy disease.”
Daley stressed that the reprogrammed cells won’t eliminate the need or value of studying embryonic stem cells.
“At least for the foreseeable future, and I would argue forever, they are going to be extremely valuable tools,” he said.
The reprogramming work was funded by the National Institutes of Health and private contributions to the Harvard Stem Cell Institute.